Today is mixed emotions

Hello again. The Thicket mix seems to be doing the trick. She did get sick last night which was weird but before I gave her the whole bottle she kinda gagged on it. I waited a little while to feed her and then gave her the bottle since it had been about 4 1/2 hrs since she had a feeding. She drank it about 3:30am and then I put her bink in her mouth and out came the formula and it all.
Today she seems to be doing fine. I think though that I should feed her more than 3 oz every 3 hrs.
I might just try 4 oz every 3 hrs and see how that goes. I want her to get healthy and chunky so if she does need a liver transplant then she will be OK to have one. I just really don't want to have that G tube put in and having to do it myself and all that. I just want her food to stay down and her to be a healthy weight. I am really trying but to me I just feel that I am failing and going backwards all the time. Anyways I am gonna go get some sleep cause I know Lil Trinity will be waking me up here soon for another feeding. Well all till next time.
Chantel Conn

WOW! Need to update more often!

Hello there again. It has been awhile since I have been on here and I apoilgize for that. Just been really busy with life. Running around with my head cut off. Ok as for the update on Trinity so far so good. Went to my regular peditriction and had a check up for her. He looked at her and talked a little bit and thinks that she will have to have a liver transplant soon. That was this Wednesday. Went up to Doernbeckers on Thursday this week and FINALLY got to talk to my regular Gast. Dr. and she said that we wern't ready just yet for the liver transplant but she didn't think that we were that far away from it. She told me that for one she would have to maintain her weight (get fatter) and get her vitamins and biliruben levels smoothed out for her to have it. She did give me something that is keeping her food down (thank God for that ). It is called Thick It and it works wonders. Just 3 teaspoons in her bottle along with the Progestmil and the Polycose. She has been keeping her food down since I got the stuff and I am a really happy Mother. The Dr said that if she wasn't keeping her food down that I would have to spend the week up there at Doernbeckers and then be trained to put a tube in her nose to her stomach and then have to take her home and have it here for a long time, and that there would be lots of stuff for medicare to send to my house. >< Lets just hope for the best.I just want this stuff to do the trick and we won't have to go down the road of her liver transplant and just have a happy healthy child. She did get off her aquavite medicine but as for now she is still on 5 medicines. It is ok and working like its going to. I would just like to see my child normal color. She is babbling now which is cute and I do get a coo and a talking to when I talk to her or just look at her. As for crawling she hasn't started the army crawl just yet but she is working on it. Sometime soon I will update a new picture of her (if I can remember). Hopefully I will keep blogging regularly. Till next time
Chantel

Today,Tomarrow, and Forever

Hello again! I haven't really got to blog these past couple of days cause I have been really busy with dealing with a 8 year old and panning out medications left and right, cleaning up vomit, diapers, laundry and all that fun stuff a parent has to do. That and being slept deprived cause I have to wake up every 3 hrs to feed Trinity. Don't get me wrong I am not complaining at all. I love being a mom and I think that this is making me a stronger woman inside and out. So anyways update on my daughter, she is doing fine gaining weight per normal (finally) . We have her on 24 cal diet, so for 100ml of water we give 2 scoops. We did have an incident last night after giving her the medicine bottle. Yes she did get sick, but I think that was because of 1 or 2 things. Either she got way to much air in her bottle, or she choked cause she was falling asleep. I got her cleaned up and she was fine. Then I waited a little while to feed her the rest of the bottle. She still looks yellow but I can tell she is getting tubby. Well that is it for now. Till Next Time
Chantel

*Yawn* Can't Sleep At All...

Hello there. Yes I know it is 2am in the morning, but I can't sleep worth a darn. It is to hot in my house to sleep for 1 and for 2 my mind is just racing at the moment. I hope that they go to weigh her and we can just come home. Ya never know I keep an open mind. Would be nice though. The one thing that I am going to do is ask for a blood test tomarrow for her biliruben levels. I really want to know if they are going down or not. Some days she looks like she is clearing up and other days she looks really terrible to me. Well the Princess is up for a feeding I need to get off here. Till next time.
Chantel Conn

Dealing With Emotions

Hello there all. Today has been really crazy cause I have been dealing with my daughter getting sick lately, and I can't seem to keep anything down her.. even her medicine. I am so worried and scarred that she is going to have to go through with a liver transplant, I feel like I am going to burst. When I was little about 5-6 years old , I dreamed about having a daughter and naming her Briar Rose or Aurora like in the Sleeping Beauty movie. Yes I was a child, and no I didn't get to name her that but her name fits her for what she is going through. I always knew that I would have a daughter and now that she is here I wouldn't trade her for anything. She is my little angel and my lil boo boo bear. As tears are rolling down my face, I am so full with emotion cause I don't know what I would do if anything happened to her my world would be crushed. I really feel bad for my 8 year old cause I don't think I am giving him the attention he needs. He is such a wonderful little boy. He has really helped me these past few weeks with handing me towels to clean up vomit or diapers and wipes. I love him so much also, he is my little bunny so I call it. If I accidently call his sister bunny he gets a little mad and tells me " Mom that is my nickname." But if I call him that infront of his friends he gets a little embarresed which I can understand. As for now the plan is this week to get in Monday still and see if they can get her weight gained back.
I might bring her in early today since my parents fed her here at 11:30pm and she threw up.
Got back home and she got sick again all over her car seat. Well enough for now I think I need to get some sleep. Till next time.
Chantel Conn

Update On Trinity

Hello there. Yes I know that I am behind in blogging. Please forgive me. It has been kaos for the past few weeks. We had a small town gathering in Carlton, Oregon and that was insane. We did though get to watch some of the parade which was Trinity's first and she pretty much slept through it cause it was 95 deg. Hot! Now in our home town we have Turkey Rama yesterday and today. Today we are going to go to the demolition derby, mud races and the monster truck gathering at the Yamhill County Fairgrounds. Trinity will stay with Grandma at the time since it is 91 deg here already and I don't want her to burn. Last night and this morning was crazy. I fed her 3 oz of milk and then got ready to burp her. Blahhh, up it came. Then as I was making dinner my husband was watching her and they were playing. She burped and 1 min later she puked totally. Out her nose and mouth all over the blanket and then he hollered at me for me to help. Then we were up till 3:30 am. She could not go to sleep for some reason. Maby her stomach was still upset from her getting sick.. who knows. Well I need to get going. Getting ready for tonight. Till next time
Chantel Conn

Having Fun

Hello again. Well yesterday was loads of fun. Trinity has the poos and I have no idea what is causing it. She was so happy and then I walked back in 30 min later to check on her and she had it running down her leg and up her back and clear up to her belly and it soaked her clothes. Ewww..
She is doing alot better than she was. You talk to her and she just smiles and giggles. Yesterday she got so mad cause I was changing her that she flipped herself over to her stomach. She is very strong. I just can't wait till she starts talking and saying "Da da" and "Momma". Other than all that there is nothing else that I can update on. Till next time.
Chantel Conn