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Tuesday, June 24, 2008

Having Fun

Hello again. Well yesterday was loads of fun. Trinity has the poos and I have no idea what is causing it. She was so happy and then I walked back in 30 min later to check on her and she had it running down her leg and up her back and clear up to her belly and it soaked her clothes. Ewww..
She is doing alot better than she was. You talk to her and she just smiles and giggles. Yesterday she got so mad cause I was changing her that she flipped herself over to her stomach. She is very strong. I just can't wait till she starts talking and saying "Da da" and "Momma". Other than all that there is nothing else that I can update on. Till next time.
Chantel Conn

Sunday, June 22, 2008

Arrggg... days of fun....

Hello again. Well today has been fun.. NOT XD! Started off with Trinity waking me up as she is choking on her spit and got sick a little. After having a major attack with her freaking me out I waited a good 30 min and then I fed her at 6:30 this morning. Fell back asleep and then she woke me up at 9am for another feeding. She was fine after those feedings and didn't get sick. Ok then we get her fed at 12:30pm and I sit her down for a break and wanting to go out side and smoke, ( I know its a bad habit and I will quit again). So as I set her down of course she wants to still be held... I let her cry a little and then she starts smiling and kinda laughing so then everything is cool (for the time being). I get back in the house sit down and then she just starts screaming. I'm thinking OK she just got fed, changed , what in the world is wrong with her. I pick her up and as I do something is running down my arm.... ARRGGG she had the case of the runs.... all over in her seat all over me and all down her leg. So get her cleaned up and such. Feed her again at 4pm. She is doing fine. Feed her again at 7:00 pm and get about 3 1/2 oz down her she is done get ready to burp her and BLAHHH all down the front of me .. so its bath time for us both. Wipe her up so she doesn't slip in my hands and then get her in the baby bath. Now at the time being I have no idea what is wrong with her. Maby she has a belly ache I don't know but the Dr's. told me to at least feed her 8 to 12 times a day and she is only getting 3-4 oz in a feeding. What am I doing wrong. Who knows. Tomarow I am going to make a phone call and see what I can do cause really she did gain some weight but if she keeps getting sick like this she is going to be going backwards instead of forward. And Mommy is going crazy. Well till next time.
Chantel Conn

Thursday, June 19, 2008

Somewhat Ok News

Hello there. Yesterday I didn't post cause I was so wiped out and tired, thanks to the trip half the day to Portland. Well we got there at 12:20 signed into get Trinity's blood work done and were sitting. She got hungry and I fed her a bottle, and she got so relaxed that she did a poop.. (WHOO STINKY) So then went to change her and low and behold they called her name and I was in the changing room . Then went outside and then sat again for 15 more minutes.Then decided that they skipped me and they had on the paper that they called 4x and skipped her. So I signed her up again and they came out in 2 minutes and asked who was Trinity's Mom.. I hollered and then they got her with in 2 minutes. Took her blood out of her arm, and that was not good. She screamed loud and hated it. Then waited another 30 minutes and then got annoyed and asked what was taking so long , they said that some one had a staff infection and that they had to sanitize the other room. Annoyed again went to sit down and she pooped again so back to the bathroom. Finally 10 min later they took someone elses room and got us in. Well then in walked a resident who said that the biliruben was down to 4.5 ... WHOO excited.
Then 15 min later same dude walked in and said that was only the direct not total. (there are 3 kinds of biliruben. Direct , Indirect, and total) So another long *** wait and I am frustrated , then in walks the gastric doctor and she looks her over and looks at the poo and says she is coming along well. Then the surgeon Dr. and says that the biliruben hasn't dropped like he wanted it to but that it did drop a point and that he wants to see me back in a month. Yea... get to go to Portland again. So after being there at 12:20 pm and finally getting out of there by 3:45 we get to rush Hr traffic. Oh well what can ya do right. So so far so good. Just gonna take time and a long road to see if this kasi procedure will do the thing. Till next time.
Chantel Conn

Sunday, June 15, 2008

Oh yea forgot.

Oh ya I forgot to say. Thank you to all the fathers out there reading this post. You are a blessing to your family and deeply loved. We wifes, girlfriends, and or daughters appreciate you very much.
That said I hope you have A Happy Fathers Day .... beacuse you deserve it.

Chantel Conn

Oh yea forgot.

Arrggg forgot to post....

Hello again. We are still doing fine. Trinity is starting to giggle a little bit more everyday and last night as I was watching her she found her little feet and was staring at them for a few minutes. Some of my family members are concerned about her cause she is not getting really chunky and putting on some weight. Now that I sit here and think about it for a while , she still is in newborn diapers and clothes and she is going to be 3 months here soon. To me maby it just was the surgery she had and that it might take a while for her to put on some weight and gain a few pounds. I have an appointment on June the 18Th at 12 pm up at OHSU campus, but maby I will give a call and put to rest to those who are concerned about her. She is looking better to me and is taking her medications well so I think things are going smoothly. Well have to go. Till next time.
Chantel Conn

Friday, June 13, 2008

Summer Days Here To Stay

Hi there. Today we both are doing good. Lil miss Trinity went to bed last night with Mommy at 10:30pm. And then we woke up and got fed at 3:30. Then she just woke mom up at 9:00am and then she threw up everywhere. Must be the medicine that is making her do that. Who knows. (Whoa weird just had deja vu) Well we need to go get Vincent, he is at the gastation so till next time.
Chantel Conn

Thursday, June 12, 2008

Nice Day!

Hi there. Yes it is a nice day out. About 55 deg., and windy but I will take it over rain any day. Trinity is doing great as the days go by. She is pretty much sleeping through the night now and woke me up at 6:30 am for a feeding then about 9am, so she is on a regular schedule again. Its kinda a pain to give her the medicine she needs, especially when she is demanding and wants food NOW not later. HA HA. Her incision is healing very well and she takes her medicine mixed with her formula and or breast milk good. Doesn't even spit it out. I am very lucky that she takes it that way and I am also lucky and thank God that everything at the moment is going well. Till next time
Chantel Conn

Wednesday, June 11, 2008

My Little Angel

Hi again. Last night was so nice to sleep through the night and not wake up at 5:30 am. Got some real sleep and I feel refreshed and ready to start the day. She woke me up this morning at 7:10 hollering so we got up, got her fed and changed her poo diaper. WHOO!!! Never thought as a mom I would be this excited about poo, ha ha . Kinda funny if you think about it. She is looking better by the day and I love seeing this improvement. Her drain hole is no longer leaking so that is a plus (less laundry for Mommy to do). She is starting to smile a lot more now and knows who is holding her, and getting a lot more demanding when she is dirty or hungry. Well its getting late in the A.M so I am gonna go need to finish the house somewhat today. Till next time
Chantel Conn

Tuesday, June 10, 2008

Home and Enjoying It!!

Yes I am at home sitting at the PC and looking at my dirty house but it was better than sitting up there not knowing what to do with yourself. I mean don't get me wrong the care up there was excellent but its just not the same being home. She is doing well today we woke Mommy up at 5:30 am this morning for a feeding then at 7:00 am cause we were throwing a fit and pushed ourselves up to the top of the crib. So I fed her and then we fell back a sleep then she woke up at 9:30 am and then out came yucky medicine time. She has lots let me tell you. But anything to make her better. As of right now she is sucking on her Bink and sitting in her bouncy chair and not a care in the world (and then we are trying to eat the blanket). My say is that I think everything is going well and that she is doing better by the day. She sure has the attitude of both parents, ha ha. Well we have to get some more prescriptions filled, so till next time.
Chantel Conn

Monday, June 9, 2008

Finally Out Of The Hospital

Hi there. I know that I said she would be out by tomorrow but I asked the Dr's. if it would be OK if they could release her this afternoon and they said she was doing great and that it would be fine. Today they did take her biliruben sample and said that it was way outrageous cause her blood is clotting and that they would take it next Wednesday and that there was no worries. So as we were getting ready she puked up her formula and the nurse fed her 4 oz and she didn't know that she was getting only 2oz for a bit. So then got her kinda cleaned up and then headed down to the car she was fine and all that. Then got almost to the freeway, maybe a block away and I had the car radio turned down enough that I would hear her if she did get sick again and low and behold (blahhh). OK so I pull over get her changed cause its all gross and then her stomach where her drain was is leaking and that is all over her new outfit. So we get to the station and such . She is crying and she is gassy. We then in turn go and get her prescriptions and as we are turning into Safeway parking lot she gets sick again... there goes outfit # 2 and blanket # 2 . Get her out of the clothes and her drain hole is leaking yet again, so I change her diaper, then wrap her up in a big soft blanket. So as we get back out to the car she is leaking out her drain again and have to change it. We get home get her all cleaned up somewhat change her bandages, clothes ect and she is crying cause she is so gassy. I pat her on the back and she gives me this nasty formula burp in my face. (blah). Get her in the car and back to the gastation , and as of this time being she is doing well. Making faces and smiling a little at people. So ya there are some down falls to what has happened to our family , but to tell you all the truth , I wouldn't change it for the world.
Made me open up my eyes and realize that life is what you make it , so make it as best you can.
Till next time
Chantel Conn

Day 8 In Hospital

Hello there, back again. Well as of this morning they said that she looks great and that we can both go home tomarrow. WHOO! I am so excited. Today they just have to check her biliruben levels with a test. They just got done checking her stools and said that the green was toxins in the liver and that was excelent, and that if he didn't know this was her room he wouldn't have recognized her. So I am sure that her color has changed alot. I am so pleased with what is going on with her. I am glad for all the people praying for her, and thankful to my lord and savior that he gave myself and Donny this wonderful, presious little angel. If it wasn't for a little faith, I would have given up long ago. Well till next time.
Chantel Conn

Sunday, June 8, 2008

Day 6 of being in Hospital

Hello there! I am back again to update people on my family and the progress of my daughter Trinity Anne.
Well as of this morning at 9:30 am I finally got to feed her some pumped breast milk and then a 2 oz bottle of her special forumla. Well as I was sitting there acting all goofy and such she had a bowel and started getting red in the face and crying. So I was all excited and such, and I must have been very loud cause the nurse that is taking care of her ran in and asked what was going on. I told her and she cheered. That was at 10:25 am. Then she got her catheter taken out today and then one of her I.V's blew again. Whoo... (not) . So then came the poking and prodding of her 3x then they finally got one on her foot. She is so black and blue and I was getting frustrated so I decided to take a break and go out to the car before I lost my cool. Called my husband several times as I knew he was headed on the way up and after 3x calling him I got him on the phone to let him know what was going on. Finally he showed up at 12:30 and got to see her and hold her. I was so happy to see him with her I could have burst with happiness. So then just before we went to lunch I got to feed her the vitamins in a bottle with diluted down pedialite. (Smells really gross) Went to lunch and all that, then got back and my husband Donny said that he thought he smelled something. WHOO POOP!!!! I was all excited again and the nurse I caught in the hall and said loud " She did a doo doo". We laughed and got her all cleaned up and then she fell asleep again. So all is going still as planned. Her incision looks good other than it is pretty much across her stomach. And she still has whats called a drain in her belly from the left over stuff from surgery, and she did get a new I.V put in, but to me it is all looking great. She is up, doing well and she just smiled at me just before I came down to the 9th floor to do laundry. I am glad things are finally looking up. Can't wait to come home. Well all till next time!!
Chantel Conn

Saturday, June 7, 2008

Day 1 of blogin

Hi there all. This is my first time so don't laugh. XD. As most of you , friends and family that are looking know who I am , and those of you who don't my name is Chantel Conn. I am wife and a mother of a 8 year old Vincent and a somewhat new mother to a daughter Trinity that is 2 months.
So pretty much this blog is going to follow some really importand stuff that has happened to my daughter here these past couple of weeks, and is dedicated to see if there is ever going to be a cure for Biliary Artresia. So now for my story ...
My pregnancy was somewhat normal other than I was way overweight and after a blood glucouse test I was told that I had gestational diabetes. So after grueling time of (kinda) going on a strict diet and all that everything was going ok. My blood sugar levels were spiking about the last week I had left and went in on Tuesday April 3rd 2008 to my Drs. apointment. Long story short I told them that had a cold and that I really wasn't taking my blood sugar levels cause I was in bed most the week. Well be known to me they decided to take her c-section that day at 8:07pm and was 8lbs 8oz and was healthy and cute and tubby. So as days went by someone noticed that she was turning a little yellow and that she might have jaundice. I just shrugged it of as oh it will go away. Well then she had her 1 week check up and I asked them if they would take a look at her to make sure and (not naming Drs. Office) they said she was fine. After awhile it got worse and worse so finally a lady that I know from my fathers station looked at her and she knew something was wrong so she called her nurse friend and then called my mother and told her to tell me to get a 2nd opinion. So then we went to a family Drs. office in Mcminville and they ordered tests on her 2x. Both results turned out that her billiruben was to high and her liver enzymes were also elevated. So the Dr (who I known for years) called OHSU and got me an appointment with in a week. So then we went for more test and Ct scans to see if the tracer could be found that got injected into her I.V. That was not going well on Thursday May ,29th, so they ordered me to come back the next day. We did and then we got good news that the tracer was down in the bowels and that it would be minimal for sugery. Well got up there to the Dr. up at OHSU and got told that she had this rare disease Biliary Artresia. That was like a slap in the face my hopes were so dang high and then bam the hammer hit the nail. She was going to have sugery at 2 months old. On June 2nd 2008 we went in for pre-operation and she had an I.V put in and all that. Then came the day June 3rd 2008 surgery day. All went well and lots of people were there to support me and my husband. Felt like an eternity when I finally got to see her. As of now she is doing well. She had her biliruben checked and it did go down a point. And she did poo her orange vitamins out day before yesterday. So as of June 7th 2008 (today) she is progressing and might be able to come home tomarrow or Monday night. I can't wait!!!!! Well everyone till next time.
Chantel Conn