Has been Way Too Long....

Sitting here today with my parents going through pictures of how far Trinity has gone in these short but long 6 years.... Gosh how time fly's! It's faint but I can remember bits and pieces of her transplant and begging God to just give me on miracle and a Christmas wish that all I wanted was my daughter to have a fighting chance to survive . Broke my heart a couple of days ago as a mother and her sister were talking to me about her daughter needing a heart transplant and my heart broke for her, regardless of it being a heart,liver,lungs or kidney I can relate to what the mother is going though. Months of waiting, labs after labs after more labs etc. I told her she was in my positive thoughts ( since I didn't want to offend) but I silently prayed while checking out my next customer "please lord give her strength and watch over her & her child"... Trinity is doing pretty good ,she is starting the 1st grade. On September 2nd and is very excited since her best friend is in her class! I can't wait! No tears I hope for me though! Well until 1st grade pics are taken ... TTFN Ta ta for now!

1) Trinity and her Brother Vincent 1st day of Preschool / 7th Grade September 2012

Thought It Was Time For An Update!!!!

Thought now was a good time for an update on Trinity Anne. She is doing swimmingly and just turned 5 April 3rd. We had an awesome Birthday Party for her and she wanted Minnie Mouse for her birthday theme. Just before her Birthday she decided to have her ears pierced and I went and got them and did them myself. She was and still is so excited! She keep bugging me for "dangle earrings" its too cute! As for her health, her labs are going OK at her local children's hospital and we are going 1x every 3 months. Her prograf level was kinda low and I didn't like it too much so I emailed her doctor and she said as long as she is not having vomiting or diarrhea she is OK no worries. So we will go at that. She has been going to Preschool regularly and enjoying everyday of it that she gets to go. Once in awhile she has to stay home and she gets ticked at me but I just reassure her it is for her own good and the other kids as well and she can see them next time she goes to school. Trinity is excited to start Kindergarten and wants to play soccer this fall. I am so thrilled that she is doing well and is growing and thriving and loving life. I am proud to be her mother and proud to say she is mine. Well until next time .. TTFN ta ta for now! 1)Pic is me and her being silly last summer 2)Is my fav from my IPhone !! 3) July 4th 2012 another fave pic!

New Pics of The Kido

Random Pics Of Trinity Yesterday!
Enjoy

The Month Of Love and Spending A Lot Of Money....

Hi. Been awhile since I got on here again so I decided to update! Trinity's lab work looks great! Here Prograf level increased to 3.5 so that is good to hear and then her EVB was negative this time so that is also good to hear. Haven't got a letter from the Docs yet but it seemed like chemicaly things were going well in her favor. Other than that not much going on with her. She is acting very onery lately and her new word is NO now which I don't like and am teaching her if she back talks and tells me NO then she goes to time out. So for now the past 2 days she says NO and then says " I don't want to go to the naughty chair!" Pretty hard not to laugh at her! She is getting smarter by the minute! Anyways that is all for now
Till Next Time

Chantel R. Conn

Doernbecher Follow Up Thur

Well Wow. Thought I might take some short needed time to update this since it has been so darn long. Well Trinity grows each and everyday more and more and amazes me more and more also. Lately her new trick is taking all the dirty laundry out of the basket and turning it upside down as her step stool and turning on and off light swithches. New nickname for her is stinker cause that is what she has been lately.
I decided to keep a sharp eye on her now beacuse of yesterdays fiasco .. I needed to use the restroom and she in 2 minutes took her dolls hat off and decide the fish needed to be fed a plastic hat.. *sigh* I am defenatly purchasing a fish tank child lock A.S.A.P. As for her blood work goes last month they are not happy that her Anti Rejection medication is low but they can not increase it untill they get rid of the CMV virus she has had on and off since transplant so they are eye balling it closely.
They say she is growing ok, but now after all this time saying she is short and to "Big" for her height to weight. (Took forever for her to gain this weight, even was on Pedisure with meals) So they are keeping tabs on that also. Other than that nothing else but her sleeping routine lately is bothering me so I am going to talk to them about that Friday. So lab work and GI doctor visit at Doernbecher and we will see how that goes.

Till Next Time

Chantel R. Conn

2 Year Transplant Anniversary

WOW!! Where does the time go.. really. I mean I can remember just yesterday being down in California telling her good by as she got wisked away into a room and had her transplant done. She is doing fairly well, even though we have hit some bumps in the road just recently, but all in all she seems to be doing great. She does have mishaps lately like drinking to fast and then getting sick everywhere. But she is just being 2 and independent now more than ever. I am so proud to be her mom, even though she tosses her self down when she doesn't get her way and I get pretty frustrated. God has blessed me and our family and that I am grateful for. Well other than just a short write on the blog I have to go now. Time for the other meds to be adminsitered to her. 10 am and all is well..

Give, Hope, and Pray Hard
Happy Thanksgiving 2010

Chantel R. Conn