Coming Up On & Year Liver Transplant Anniversary

Wow... where does time go. Just received the letter in the mail that Stanford Team is going to be up at Doernbecher Nov 18th 2015 . Seems like just yesterday I was changing her nasogastric tube  and setting up her feeding machine so she could eat and nap... *shakes head* Nothing much is going on with her, she is loving 2nd grade and enjoying living out in the semi country. She had an awesome summer playing with dirt and bugs and salamanders. She loves fishing and for her being 7 she is very patient with waiting for one. That's about it for now. Till Nov 18th 2015

Live, Laugh , Love

Chantel R. Conn


1) The Conn Family Oct 2015

2) Donny & Trinity

3) Donny & Trinity being silly

4) Awesome Sky On The Way Home

6thYear Liver Anniversary 2014

6TH Liver Anniversary 2014

Today we celebrated a 6th year liver transplant anniversary for Trinity and it was simple and lovely. She decided she wanted a Red Velvet Cake at our Cake store we always go to and then she wanted lasagna for dinner.. The lasagna didn't turn out too bad but the cheese burnt to the bottom thanks to me talking to her father too long right after he got home from work (OOPS!)
SOOoooo.. she decided to finish up her night with a game of Go Fish with her father while stealing tiny bites here and there while the movie Ice Age was playing in the back ground. She lost but she did gain a sense of how to act when you lose a game...Now we are trying to wind down and head to bed after a huge sugar high from the cream cheese frosting (UGH). Stanford team did come up and do a yearly check up on her and she is still doing well with her labs (still 3 x a month and Liver Visits to OHSU 1x a year, being no complications) Good news is that she decided since she is taking an acid reflux medication in a capsule that she wanted to give up her liquid form of her medication and go to pill form. The doctors did not have any problem with that so now she is taking 1 prograf pill in the morning and her cellcept pill is only once a day and she takes 2 tiny pills of prograf at night. She is transitioning wonderfully and she feels like she has more control and enjoys not having to take the chalky cellcept. So that is that for 2014 for now puplis... 

Till Next Time :

Chantel R. Conn

Pictures 

1) Growler Boys Room 
taken by Mrs. Fitzgerald 

2) Home with Mom 
making silly faces

3)November 13, 2014 
Waiting for Liver Team 
from Stanford to come 
and visit @ OHSU

1)

2)

3)

Has been Way Too Long....

Sitting here today with my parents going through pictures of how far Trinity has gone in these short but long 6 years.... Gosh how time fly's! It's faint but I can remember bits and pieces of her transplant and begging God to just give me on miracle and a Christmas wish that all I wanted was my daughter to have a fighting chance to survive . Broke my heart a couple of days ago as a mother and her sister were talking to me about her daughter needing a heart transplant and my heart broke for her, regardless of it being a heart,liver,lungs or kidney I can relate to what the mother is going though. Months of waiting, labs after labs after more labs etc. I told her she was in my positive thoughts ( since I didn't want to offend) but I silently prayed while checking out my next customer "please lord give her strength and watch over her & her child"... Trinity is doing pretty good ,she is starting the 1st grade. On September 2nd and is very excited since her best friend is in her class! I can't wait! No tears I hope for me though! Well until 1st grade pics are taken ... TTFN Ta ta for now!

1) Trinity and her Brother Vincent 1st day of Preschool / 7th Grade September 2012

Thought It Was Time For An Update!!!!

Thought now was a good time for an update on Trinity Anne. She is doing swimmingly and just turned 5 April 3rd. We had an awesome Birthday Party for her and she wanted Minnie Mouse for her birthday theme. Just before her Birthday she decided to have her ears pierced and I went and got them and did them myself. She was and still is so excited! She keep bugging me for "dangle earrings" its too cute! As for her health, her labs are going OK at her local children's hospital and we are going 1x every 3 months. Her prograf level was kinda low and I didn't like it too much so I emailed her doctor and she said as long as she is not having vomiting or diarrhea she is OK no worries. So we will go at that. She has been going to Preschool regularly and enjoying everyday of it that she gets to go. Once in awhile she has to stay home and she gets ticked at me but I just reassure her it is for her own good and the other kids as well and she can see them next time she goes to school. Trinity is excited to start Kindergarten and wants to play soccer this fall. I am so thrilled that she is doing well and is growing and thriving and loving life. I am proud to be her mother and proud to say she is mine. Well until next time .. TTFN ta ta for now! 1)Pic is me and her being silly last summer 2)Is my fav from my IPhone !! 3) July 4th 2012 another fave pic!

New Pics of The Kido

Random Pics Of Trinity Yesterday!
Enjoy

The Month Of Love and Spending A Lot Of Money....

Hi. Been awhile since I got on here again so I decided to update! Trinity's lab work looks great! Here Prograf level increased to 3.5 so that is good to hear and then her EVB was negative this time so that is also good to hear. Haven't got a letter from the Docs yet but it seemed like chemicaly things were going well in her favor. Other than that not much going on with her. She is acting very onery lately and her new word is NO now which I don't like and am teaching her if she back talks and tells me NO then she goes to time out. So for now the past 2 days she says NO and then says " I don't want to go to the naughty chair!" Pretty hard not to laugh at her! She is getting smarter by the minute! Anyways that is all for now
Till Next Time

Chantel R. Conn