Still Up At Hospital....

Hello again! Well as of tomorrow Trinity will be a Doernbecher Hospital for a month straight. I can't believe the time has gone by so fast. Well so far as of what happened last week I had a really crazy time with what was going on with Trinity and got told so many different things. The week before last she went under another Liver Biopsy to get 2 more samples to see what is going on with her. Then here last Wednesday they told me that the Pathologist at OHSU said that they were sure that she was rejecting her liver. WOW! So then I had to call Red Cross to have them get a message to him letting him know what was going on. ( He is in the Army National Guard and was in South Carolina at Fort Jackson going to basic training.)Then he finally got home on Friday. Then before he came home they finally got the slides down to Stanford University and there Pathologist said that she is not rejecting her liver, and that they are going to run more tests to see what is going on with her. They are also concerned about her gaining weight and since she has been off the steriod Prednisone her apatite has dramatically decreased... The most she will take is 4 oz every 3 hrs, and that is just some of the time. Before they took her off the steroid she was taking 6 oz every 3 hours. I still have no idea when she is going to get better to be sent home. I just feel like they are scratching their heads and don't know what to do. Her CMV virus that she was hospitalized for here 4 weeks ago, the majority of it seems to be going away, but her ALT and AST scores have jumped sky high compared to what they were when she was just starting to have CMV virus. Her GGT scores are O.K and they have settled down, and her Biliruben levels and CBC are fine. Before she had the liver biopsy though, she did have a blood transfusion of 0+ blood beacuse her white blood cell count was low and she was getting mild anemia. She looks great now it's just getting her to eat. I really want them to go back to the NG tube but the Dietitians said that would be putting her a step back and they changed her formula to Neocate now instead of Pregestmil. I think it smells and I'd bet it tastes worse. Then they just added here this week Polycose to her formula to give her more calories. I just wish I could make her better so she can come home and we can all be in one place instead of us being here and going there and so on. But such is life I guess... Other than that she is doing fine. Donny let me kinda have the night off and I have our son here at home so he can go to school tomorrow, and I need to tidy up the house a little. So we will take turns till she gets to come home. Cause up there you don't get much sleep at all. Well I need to get some rest. Sorry it's been so long since I updated!! I will try and work on that!
Till Next Time.

Live..like it's your last day
Laugh..till your stomach hurts
Love..like you have never been hurt

Chantel R. Conn