Doernbecher Follow Up Thur

Well Wow. Thought I might take some short needed time to update this since it has been so darn long. Well Trinity grows each and everyday more and more and amazes me more and more also. Lately her new trick is taking all the dirty laundry out of the basket and turning it upside down as her step stool and turning on and off light swithches. New nickname for her is stinker cause that is what she has been lately.
I decided to keep a sharp eye on her now beacuse of yesterdays fiasco .. I needed to use the restroom and she in 2 minutes took her dolls hat off and decide the fish needed to be fed a plastic hat.. *sigh* I am defenatly purchasing a fish tank child lock A.S.A.P. As for her blood work goes last month they are not happy that her Anti Rejection medication is low but they can not increase it untill they get rid of the CMV virus she has had on and off since transplant so they are eye balling it closely.
They say she is growing ok, but now after all this time saying she is short and to "Big" for her height to weight. (Took forever for her to gain this weight, even was on Pedisure with meals) So they are keeping tabs on that also. Other than that nothing else but her sleeping routine lately is bothering me so I am going to talk to them about that Friday. So lab work and GI doctor visit at Doernbecher and we will see how that goes.

Till Next Time

Chantel R. Conn

2 Year Transplant Anniversary

WOW!! Where does the time go.. really. I mean I can remember just yesterday being down in California telling her good by as she got wisked away into a room and had her transplant done. She is doing fairly well, even though we have hit some bumps in the road just recently, but all in all she seems to be doing great. She does have mishaps lately like drinking to fast and then getting sick everywhere. But she is just being 2 and independent now more than ever. I am so proud to be her mom, even though she tosses her self down when she doesn't get her way and I get pretty frustrated. God has blessed me and our family and that I am grateful for. Well other than just a short write on the blog I have to go now. Time for the other meds to be adminsitered to her. 10 am and all is well..

Give, Hope, and Pray Hard
Happy Thanksgiving 2010

Chantel R. Conn

New Pics Of Trinity

1)Her Doing Pig Nose On The Screen

2)Her Being Silly

Went To Primary Care Physican

Hello all again. Well yesterday at about 8:30 am we went to Trinity's physican here localy in our town and she checked out great with a clean bill of health. He read me a little bit of the synopsis of what they were thinking it was since 2 of the Dr's were not agreeing with one another. One thought it was Staph Infection and the other thought it was Chicken Pox. So really they still didn't know after all this time and 15x pokes and 2 blood draws later. So the Dr here just said to keep her on the antibotics and that she would be good to go, but if any more bumps showed up to give him a call immediatly and take her in to see him. So she is looking great and is back pretty much to her normal self. Just have to wait to get her re-adjusted to home life since she was up there for almost a week she wasn't sleeping good and that takes time for her to adjust back to her schedual at home. Well that is all for now.. till next time.

Live, Laugh, Love,

Chantel R. Conn

We Are Home For Now...

Hi all. We got released today at about 1pm from Doernbechers. They are still treating as Chicken Pox even though even today they still did not know what it was. She is finally eating more than what she was when we left. She is comming along well and they have her on an Antibiotic for 7 days 3x a day for her condition. Other than that we just have to call if there is going to be any more flare ups or if we have anymore conceirns at all. Well all thanks for the prayers and we will keep you informed as to what is going on.

Love,
Chantel R. Conn

New Updates

Hey there friends and family. So far no news what so ever on what Trinity has. She is hanging in there and being such a big girl with getting poked daily ect. All we do know is still that they are treating her condition currently as Chicken Pox ( they do not know if it is still at this time) and have her on several antibiotics oraily. The bumps are going way and are looking better daily. I will try sometime late tonight to post a new picture of her. So I guess no news is good news.. *sigh*

Till next blog,

Love,
Chantel R. Conn

These Are Before Pics....