Trinity Anne After Kasi Procedure

Hello Mommy!!!
Ohh whats that Mommy?!
Yes I am cute....

Hey what is up !?

Ya I am cooing....

Hot Indian Summer!

Hello! Today was ok. Little miss (as I call her) kept mommy up all night last night. She didn't feel very well and I think it was beacuse of the weather. It was about 90 yesterday and I think it got to 92 deg. today. WOW and it's the middle of September that is crazy. I am sure of the weather got to her since I was up untill 2:30 am dealing with changing diapers, about 4 thanks to the doo doo's.
We took our medicine last night pretty well but the others were comming back up. Today is the complete opposite. Got about 2 oz of the medicine bottle and that was it. Right at the moment she is babbling and probably wanting a bottle. It is a oven here in the apartment and the only thing that is keeping the family cool is fans. Well it is time to go. Till next time.
Chantel Conn

Trinity Anne Still Getting Sick

Hello again. Today has been fun oh my let me tell ya. Little Miss has been getting sick all day and I don't know if it was the heat wave we had or just her but almost every bottle she has had has been comming back up. I hope it is good news on Thursday when I go to my Dr's. office and get her weighed. She also has been cranky today and I really think her teeth are getting worse and really bugging her. Well have to go she is ready for bed. Till next time
Chantel Conn

September 11th 2008

Forgot..
I want to say to the people out there who lost there loved ones on September 11 2001,
I want to send out my condolences to you and your family's. They will never be forgotten, and to all the troops out there fighting for our country and our nations safety Thank You and God Bless You!!!

Chantel Conn

Whoo! Gaining Weight Slowly

Hello there. Today I did get Trinity weighed at the Dr's. office and she gained 2 oz. That is awesome . 2 weeks ago I took her in and she went from 9lbs 8oz to 10lbs 1 oz. So that is awesome!
She is still getting sick but I think in time that will go away. The Dr's. appointment is Oct 2nd and I really need to talk to them about if she is indeed going to have a liver transplant or not. I hate this um well she's not there yet but um... That doesn't tell me much at all and doesn't really get me prepared mentally . Other than that the family is doing OK. Vincent is in the 3rd grade this year and is growing like a weed. Donny still is in National Guard and is going regularly once a month to drill. Till next time
Chantel Conn

Today is mixed emotions

Hello again. The Thicket mix seems to be doing the trick. She did get sick last night which was weird but before I gave her the whole bottle she kinda gagged on it. I waited a little while to feed her and then gave her the bottle since it had been about 4 1/2 hrs since she had a feeding. She drank it about 3:30am and then I put her bink in her mouth and out came the formula and it all.
Today she seems to be doing fine. I think though that I should feed her more than 3 oz every 3 hrs.
I might just try 4 oz every 3 hrs and see how that goes. I want her to get healthy and chunky so if she does need a liver transplant then she will be OK to have one. I just really don't want to have that G tube put in and having to do it myself and all that. I just want her food to stay down and her to be a healthy weight. I am really trying but to me I just feel that I am failing and going backwards all the time. Anyways I am gonna go get some sleep cause I know Lil Trinity will be waking me up here soon for another feeding. Well all till next time.
Chantel Conn

WOW! Need to update more often!

Hello there again. It has been awhile since I have been on here and I apoilgize for that. Just been really busy with life. Running around with my head cut off. Ok as for the update on Trinity so far so good. Went to my regular peditriction and had a check up for her. He looked at her and talked a little bit and thinks that she will have to have a liver transplant soon. That was this Wednesday. Went up to Doernbeckers on Thursday this week and FINALLY got to talk to my regular Gast. Dr. and she said that we wern't ready just yet for the liver transplant but she didn't think that we were that far away from it. She told me that for one she would have to maintain her weight (get fatter) and get her vitamins and biliruben levels smoothed out for her to have it. She did give me something that is keeping her food down (thank God for that ). It is called Thick It and it works wonders. Just 3 teaspoons in her bottle along with the Progestmil and the Polycose. She has been keeping her food down since I got the stuff and I am a really happy Mother. The Dr said that if she wasn't keeping her food down that I would have to spend the week up there at Doernbeckers and then be trained to put a tube in her nose to her stomach and then have to take her home and have it here for a long time, and that there would be lots of stuff for medicare to send to my house. >< Lets just hope for the best.I just want this stuff to do the trick and we won't have to go down the road of her liver transplant and just have a happy healthy child. She did get off her aquavite medicine but as for now she is still on 5 medicines. It is ok and working like its going to. I would just like to see my child normal color. She is babbling now which is cute and I do get a coo and a talking to when I talk to her or just look at her. As for crawling she hasn't started the army crawl just yet but she is working on it. Sometime soon I will update a new picture of her (if I can remember). Hopefully I will keep blogging regularly. Till next time
Chantel